Community-based dialogue: engaging communities of color in the United states' genetics policy conversation.
نویسندگان
چکیده
Engaging communities of color in the genetics public policy conversation is important for the translation of genetics research into strategies aimed at improving the health of all. Implementing model public participation and consultation processes can be informed by the Communities of Color Genetics Policy Project, which engaged individuals from African American and Latino communities of diverse socioeconomic levels in the process of "rational democratic deliberation" on ethical and policy issues stretching from genome research to privacy and discrimination concerns to public education. The results of the study included the development of a participatory framework based on a combination of the theory of democratic deliberation and the community-based public health model which we describe as "community-based dialogue."
منابع مشابه
Health Services Research Spending and Healthcare System Impact; Comment on “Public Spending on Health Service and Policy Research in Canada, the United Kingdom, and the United States: A Modest Proposal”
The challenges associated with translating health services and policy research (HSPR) evidence into practice are many and long-standing. Indeed, those challenges have themselves spawned new areas of research, including knowledge translation and implementation science. These sub-disciplines have increased our understanding of the critical success factors associated with the uptake of research ev...
متن کاملHealth System Reform in the United States
In 2010, the United States adopted its first-ever comprehensive set of health system reforms in the Affordable Care Act (ACA). Implementation of the law, though politically contentious and controversial, has now reached a stage where reversal of most elements of the law is no longer feasible. The controversial portions of the law that expand affordable health insurance coverage to most U.S. cit...
متن کاملDearborn-Detroit Michigan: Ethnography of Faith and the U.S. Domestic and Foreign Policy Axis
The relationship between ethnic and faith communities in the United States and domestic forces relating to a converging and diverging social contract on the one hand, and US foreign, security and military policies in national, regional and global contexts on the other hand, constitutes the key focus of this paper and the ongoing research upon which it is based. Theories related to American ethn...
متن کاملCalls for Stricter Legislation and Fear in the European Immigrant Community: Reflections of the Public Charge Debate Ongoing in the United States; Comment on “A Crisis of Humanitarianism: Refugees at the Gates of Europe”
In the editorial, “A Crisis of Humanitarianism: Refugees at the Gates of Europe,” Marianna Fotaki elegantly highlights the changing dynamics of governmental policy toward refugees, forced migrants into Europe and the move away from the principles of humanitarianism.1 The perceived threats to economy, securi...
متن کاملThe Accountability Levels of Saudi Arabia towards United Nations Mechanisms (2009-2016)
The Human Rights Council (HRC) is one of the sub-bodies of the UN General Assembly, whose duty is to point out human rights violation cases and promote the accountability of states in this regard. The UPR is the most important monitoring tools of the HRC with the aim of monitoring, promotion and protection of human rights in all states and based on dialogue and cooperation, and is based on reli...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید
ثبت ناماگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید
ورودعنوان ژورنال:
- Journal of health politics, policy and law
دوره 34 3 شماره
صفحات -
تاریخ انتشار 2009